Sitting at the intersection of research, clinical care, patient advocacy, and industry innovation, the American Neuromuscular Foundation (ANF) observed a need to better serve those living with late-onset neuromuscular diseases by bringing the community together and fostering collaboration to improve care, education, and quality of life. This is the rationale for establishing the Late-Onset Neuromuscular Disease Consortium (LONDC).
The ANF held the inaugural meeting of the LONDC prior to the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) annual meeting. We convened nearly 25 stakeholders including patient advocacy organizations, industry, and clinicians to begin to identify common challenges and potential workstreams for future cross-stakeholder collaboration.
Contact us to learn how your organization can take part in collaborative efforts to address the unmet needs of individuals affected by late-onset neuromuscular diseases.
Following publication of the inaugural meeting report, we anticipate the following steps:
