Sept. 17, 2024
Project Update – Research Complete, Advancing to
Consensus Discussion!
Consensus Discussion!
The LONDC has made strides in advancing the Common Experience Research and Awareness Campaign. We’ve concluded our research, analysis is underway, and we are preparing to start a consensus process across clinical and community advisors!
Oct. 27, 2023
Project Plan Available: Common Experience Research and Awareness Campaign
The Late-Onset Neuromuscular Disease Consortium (LONDC) is excited to begin its first project, the Common Experience Research and Awareness Campaign.
Apr. 21, 2023
LONDC Steering Committee Formation & 2023 Project Selection
The American Neuromuscular Foundation (ANF) was happy to welcome five advocacy organization leaders to the Late-Onset Neuromuscular Disease Consortium Steering Committee (LONDC-SC)!
Sept. 20, 2022
Late-Onset Neuromuscular Disease Consortium Founded to Improve Care for Adults Across Neuromuscular Conditions
Recognizing an opportunity to better serve people living with rare neuromuscular conditions diagnosed in adulthood, the American Neuromuscular Foundation (ANF) founded the Late-Onset Neuromuscular Disease Consortium (LONDC) to facilitate collaboration across advocacy organizations, academia, clinical practice, industry, and other stakeholders.
